CA22127 - COllaboratively DEveloped culturallY Appropriate and inclusive Assessment tool for Palliative Care EDUcation (CODE-YAA@PC-EDU)

All health systems across the WHO European Region should prepare to respond to the age-related increase in deaths from chronic diseases, by focusing on integration and boosting of palliative care education. CODE-YAA@PC-EDU aims to measure, explore, and promote access to palliative care education and training in the WHO Euro-region, focusing mainly on primary health care, which is considered the most sustainable and cost-effective model for palliative care delivery.

The CODE-YAA@PC-EDU COST Action will set quality indicators to establish a gold standard for high-quality education and training in palliative care.

CODE-YAA@PC-EDU will develop and provide a new culturally and ethically appropriate inclusive evidence-based self-assessment tool, CODE-YAA, to inform leadership priorities and evidence-based decision-making related to palliative care education and training. CODE-YAA@PC-EDU is composed of three Pan-European; interdisciplinary; geographical, age and gender balanced; open and inclusive; and excellence-driven working groups: FIRE, TORCH, and THUNDER. CODE-YAA@PC-EDU will provide networking opportunities and activities for researchers and innovators to strengthen Europe’s capacity to the scientific, technological, and societal challenge of ensuring access to palliative care education and training. CODE-YAA@PC-EDU will capitalise on other EU-funded projects on ethics, research ethics, and palliative care. The CODE-YAA indicators will have a long-lasting impact in Europe and beyond. CODE-YAA@PC-EDU will coordinate joint efforts to seek ways to improve palliative care education and accelerate knowledge transfer into ethically sound practices that can be shared across Europe to reduce the societal and economic burden and harmful experiences caused by people experiencing unnecessary health-related suffering.

CODE-YAA@PC-EDU – CORE GROUP

Action Chair

Piret Paal

Piret Paal

Action Vice-Chair

Grant Holder Scientific Representative

Minna Hökkä

Science Communication Coordinator

Cornelia Brandstötter-Gugg

Grant Awarding Coordinator

Leszek Pawłowski

Leszek Pawlowski

Working Group 1

Gold Standard

Stephen Mason

Stephen Mason

University of Liverpool

Working Group 2

Culture, Language & Diversity

Philip Larkin

University of Lausanne

Working Group 3

Research Coordination, Methods

& Impact Analysis

Gil Goldzweig

Gil Goldzweig

 Academic College Tel Aviv-Yaffo

Working Group 4

Capacity Building, Leadership

& Ethics

Vilma Tripodoro

University of Navarra

Working Group 5

Global Policy & Advocacy

Tania Pastrana

University Hospital RWTH Aachen

Working Group 6

Communication & Dissemination

Katarina Vojvodic

Institute of Public Health of Belgrade

WORKING GROUP TASKS

WG 1: Gold Standard

Defining quality indicators for Palliative Care Education – Testing the CODE-YAA tool

 

WG 2: Culture, Language & Diversity

Translation of the CODE-YAA tool – Preparing glossary for translation – Missions to showcase innovative teaching methods

 

WG 3: Research Coordination, Methods & Impact Analysis

Data analysis for scientific & public dissemination – Promote uptake of CODE-YAA results to relevant policy-makers and member states

 

WG 4: Capacity Building, Leadership & Ethics

Leadership Education Programme – Ethics Programme in Palliative Care – Mentorship Programme

 

WG 5: Global Policy & Advocacy

Advocacy & Policy Training – Scientific & public dissemination for advocacy and best practice

 

WG 6: Communication & Dissemination

Calls & Actions – Stakeholder communication – Dissemination congresses

Objectives: Research Coordination

Our comprehensive approach to coordinating palliative care education across Europe, fostering collaboration and innovation.

1-Defining the Quality Indicators

for Palliative Care education for the CODE-YAA

To identify and agree on a set of quality indicators for palliative care education and training.

2-Translation of CODE-YAA

tool and language diversity.

The emphasis is on a high-quality and culturally adapted translation that reflects the meaning of the original text and is appropriately worded, error-free, and coherent.

3-Testing the CODE-YAA Tool

For field testing, all participants will organise a half-day virtual country wide workshop to investigate.

4-Analysing the Data

for scientific and public dissemination

This objective will select the predictors of benchmarking for developing palliative care education and training, which will be presented for implementation across the European region.

1-Enhance Advocacy and Policy Skills

of young researchers, palliative care practitioners and allied professionals, to integrate quality palliative care into primary health care.

2-Showcase Innovative Teaching Methods

to COST ITC members through CODE-YAA missions. These short-term scientific missions are specifically aimed at the capacity-building of COST inclusiveness target countries (ITC).

3-Foster Partnerships

between mentors from the FIRE and THUNDER Group and mentees from the TORCH Group, to support each other by forming bilateral partnerships.

4-Develop, Transform, and Empower Leaders

from the WHO European Region to advance palliative care education, training, and practice internationally and to address present and future challenges in the field.

5-Foster Clinical and Research Ethics

competencies and practices among all members of the network.

6-Encourage the Scientific and Public Dissemination

competencies and practices among all members of the network.

7-Promote the Uptake of the Results

of the CODE-YAA to relevant policy-makers and member states. The final capacity building objective is to develop a summary research protocol to study pages maximum the CODE-YAA impact and the wider effects of this Cost Action.

Objectives: Capacity Building

Building expertise and fostering the next generation of palliative care educators researchers through training and collaboration.